Detailed Plan
A patient-centric blockchain-based data marketplace system. This system addresses data transactions, exchanges, and control/privacy specifications using Cardano blockchain technology to encrypt patients data as decentralized
storage.
GELMA wants to allow patients to have full control over their medical data to provide pseudonymity and anonymity financial identity and reward mechanisms. Data is stored on the Cardano blockchain to achieve security, integrity, and accountability. Cryptographic functions are employed to provide immutability and eliminate data protection vulnerabilities.
The proposed system is divided into two levels: the first level contains a Registration Unit where the authentication is done, a Private Accessible Unit (PAU) that acts as an intermediary between patient users, data buyers, and blockchain, and a decentralized app (DApp) for the patient to interact with the system. The second level represents the system backend (the permissioned blockchain) which contains the security-level elements of the proposed system.
Why GELMA and why now?
• Patient Data Personalisation – The prospect of more individualized ‘n=1’ healthcare data is accelerating.
• Remote access, localized support, and decision making are all central to creating more personalized information which in turn will drive better healthcare, precision medicine, and personalized treatment (e.g. gene therapy, genomics)
• Predictive analytics and genetic profiling will further transform treatments and the way pharmaceutical and biotech companies process patient data: mRNA, DNA, Genome Sequencing, etc.
Overview
• DApp for patient’s data exchange to enable patient financial identity and allow patient data control to the corresponding owners.
• What is driving this business plan? Patients from all kinds of therapeutical areas and diseases should be able to control and benefit from their own data.
We want as well to promote data privacy, build trust and transparency from patient data exchanges with healthcare institutions, biopharmaceutical manufacturers, and supply chain players.
• Our vision: We want a world where trust, transparency, and authenticity are core values in the post-digital and post-COVID19 version of commerce between patients and institutions. We are on a mission to use Cardano’s and leading healthcare and pharmaceutical partners to bring this vision to life.