Jenner: Patient Reported Outcomes
Current Project Status
unfunded
Total
amount
Received
$0
Total
amount
Requested
$40000
Total
Percentage
Received
0%
$ Received out of $40000
Solution
Jenner is a platform to collect anonymized outcomes for vaccinations and store them into metadata in return for a NFT as a reward.
Problem
Los resultados centralizados notificados por los pacientes suelen ser controlados y limitados. Esto conduce a sesgos sistemáticos en el desarrollo de la atención al paciente.
Impact alignment
Feasibility
Value for money

Nosotros

Detailed plan (not required) - Fill in here any additional details

Motivation We survive the pandemic of a lifetime! So let's celebrate COVID-19 vaccination and the Cardano network by doing something good for the public! In this Catalyst event, we propose a system for collecting patient reported outcomes built on Cardano blockchain. It is a decentralized and autonomous platform for the goodwill to donate their data to public for research purpose with the focus on privacy and security. This introduces a new type of systems we call decentralized autonomous patient report outcomes or DAPRO, an innovation much needed in our public health sector. Goals and Success

  • Launch a working product with good UX / UI
  • At least 10,000 answers collected
  • It is also a good community exercise since everyone who got vaccinated can participate Survey question (No PII or any specific data that can identify a person)
  1. Vaccine type: Pfizer | Moderna | Johnson & Johnson | etc.. (Note: use CVX code for storage efficiency)
  2. Fever after 1st dose (within one week after vaccination
  3. Fever after 2nd dose (if applicable)
  4. Age
  5. City
  6. Country Note: Zip Codes may be too specific. There is an option to get only the first 3 digits of the zip codes for de-identification (https://www.hhs.gov/hipaa/for-professionals/privacy/special-topics/de-identification/index.html) but City and Country are sufficient to get both anonymity and meaningful data. Metadata standard for storing patient reported outcomes (PRO) We plan to propose a CIP in Github to store the patient reported outcomes similar to NFT metadata standard (721 label). Reward Once the patient reported outcomes are collected. The app returns a NFT token as a reward. This token will be named Fauci, which is a computer generated art inspired by structure and shape of the SARS-CoV-2 virus with different features depending on the answers and other random features similar to CryptoKitties or Spacebudz. This NFT would not have any monetary value, at least not intended. It is intended as a token of goodwill. It can also serve as a trust token for future endeavors by other PRO projects. User flow
  7. User goes to the web app
  8. Connect with a wallet (probably with web wallet like Yoroi if possible)
  9. Fill out survey questions
  10. Submit with transaction fee + NFT minting fee + small service fee
  11. Plutus code stores the survey question in the metadata and mints a Fauci token and send it to the user's wallet address
  12. User receives a NFT to the wallet Researcher Flow Researchers query the outcomes according to metadata standard for PRO from the Cardano blockchain / database. The weekly dataset can also be made available to download in CSV format via web app.

Reseñas de CAs (1)

Comments

close

Playlist

  • EP2: epoch_length

    Authored by: Darlington Kofa

    3m 24s
    Darlington Kofa
  • EP1: 'd' parameter

    Authored by: Darlington Kofa

    4m 3s
    Darlington Kofa
  • EP3: key_deposit

    Authored by: Darlington Kofa

    3m 48s
    Darlington Kofa
  • EP4: epoch_no

    Authored by: Darlington Kofa

    2m 16s
    Darlington Kofa
  • EP5: max_block_size

    Authored by: Darlington Kofa

    3m 14s
    Darlington Kofa
  • EP6: pool_deposit

    Authored by: Darlington Kofa

    3m 19s
    Darlington Kofa
  • EP7: max_tx_size

    Authored by: Darlington Kofa

    4m 59s
    Darlington Kofa
0:00
/
~0:00