over budget

Self-Sovereign Health Records

$888,000.00 Requested
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Community Review Results (1 reviewers)
Addresses Challenge
Feasibility
Auditability
Solution

Securely store health records on your phone, check-in to a new healthcare provider using a QR code. Get paid in ADA for (approved) data use.

Problem:

Patient’s health records are stored in centralized databases where the patient does not own (nor can they profit from) their own data!

Yes Votes:
₳ 28,459,583
No Votes:
₳ 18,485,760
Votes Cast:
128

  • download.vnd.openxmlformats-officedocument.spreadsheetml
  • download.vnd.openxmlformats-officedocument.spreadsheetml

[IMPACT]

iOS app: User can download the app, create their account, enter their info (name, address, insurance, allergies, etc.). Alternatively their health data can be downloaded after visiting a participating healthcare provider. Data is saved securely on the phone.

FHIR app for Epic EHR systems (<https://fhir.epic.com/>): App that healthcare providers install into their EHR system (to allow health records to be exchanged with external systems via the FHIR standard).

FHIR app for Cerner EHR systems (https://fhir.cerner.com/): App that healthcare providers install into their EHR system (to allow health records to be exchanged with external systems via the FHIR standard).

OwnYourHealth server: Server that runs the contextual app inside of the EHR system. The main function of the server is to pass through (not permanently store) the patient’s EHR in FHIR format to be stored on the user’s phone. The secondary function is to anonymize and store condition and treatment information in a database that can later be searched by medical researchers and insurance companies (for a fee). The fees will be paid primarily to patients with providers also receiving a portion (to incentivize them to adopt the protocol i.e. install the required FHIR app to allow data transfer to/from their EHR system).

Cardano light client: Allow the iOS app to support ADA wallet functions, primarily to receive any future payments (in ADA) for approved access to their EHR.

The solution will increase Cardano adoption by increasing the number of users with Cardano (mobile) wallets and providing a direct usage of ADA to facilitate patient (and provider) payments. The protocol will also provide for possible future use cases including integration of identity solutions like Atala Prism and secure medical data processing via Cardano smart contracts on (Chainlink) decentralized oracle networks.

  • Performance of data retrieval function (from phone) does not meet the performance requirement of the EHR (Epic) FHIR app.

  • Delays in integrating Cardano light client with iOS app (via Mithril)

  • Difficulty getting our FHIR app approved on <https://apporchard.epic.com/> or difficulty getting hospitals to agree to install the FHIR app from <https://apporchard.epic.com/> into their EHR system.

    [FEASIBILITY]

iOS app development: Jun - Sep 2022

Application Sever development: Sep 2022 - Jan 2023

Database Server development: Sep 2022 - Jan 2023

FHIR app for Epic EHR: Dec 2022 - Apr 2023

FHIR app for Cerner EHR: Apr 2023 - Aug 2023

Mithril light client integration: May 2023 - Oct 2023

Open source the protocol: Aug 2023 - Nov 2023

Hospital EHR live integration (Epic): Sep 2023 - Oct 2023

Hospital EHR live integration (Cerner): Oct 2023 - Nov 2023

Below item costs are for 18 months (the project duration)

Architect, project manager, dev ops, product lead, QA $285,000

Engineering Lead, full stack dev (full time) $270,000

Cardano Mithril light client integration (part time) $135,000

Bacancy Contractors $180,000

Server and Software Costs $18,000

Total Cost $888,000

Founder, architect, project manager, dev ops, product lead, QA

Engineering Lead, full stack dev

Cardano Mithril light client integration

Bacancy Contractors

[AUDITABILITY]

Biweekly sprints

Incremental milestones

User able to download the iOS and enter their health info (name, address, insurance, allergies). Or have that data populated by visiting a participating healthcare provider and ingesting the data via a QR code triggered 'request' and approval.

User able to check-in to a (participating) new healthcare provider using the QR code on their phone. At least one healthcare provider (hospital) running each of the supported EHR systems (Epic, Cerner) to have installed the required FHIR app.

User to be able to specify a Cardano address in the app (for future payments can be made to

)

Entirely new

Community Reviews (1)

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